Finding a cure now...so our daughters won't have to.

Author Archive

Contest: Share Your Survivor Story!

Posted By on February 17th, 2012 at 9:03 am | 0 comments.

Are you a breast cancer survivor living in Pennsylvania with a story to share? The PBCC is seeking your survivor stories to possibly be featured in an upcoming Pink Link or Front Line. Those selected to be featured can choose from a complementary registration for the PBCC Conference in Harrisburg on October 9, 2012 OR a complementary single batter registration for a 2012 Home Run Derby event (for you to use or for you to give as a gift).

Please limit your story to between 300 and 350 words, and send a photo of yourself along with your submission in the event your story is chosen for publication. If your story is selected, you will be contacted to confirm your details and your choice of a prize. Email Amy at amy@pabreastcancer.org with your story.

Survivor Spotlight – Dawn Jones

Posted By on February 17th, 2012 at 9:01 am | 2 comments.

Dawn Jones wrote down affirmations to heal herself after experiencing a particularly hurtful encounter on Fifth Avenue in New York. Dawn was diagnosed with inflammatory breast cancer and, after her mastectomy, doctors advised her to wait at least 12 months before having reconstruction. Bald, with a size 44D breast on one side and flat on the other side, she held her head high. But on this particular day she came face-to-face with cruelty.

She was strolling down the street reflecting on the lovely luncheon she had just had with other breast cancer survivors when her thoughts were interrupted by the sound of derisive comments. She was shocked to realize they were being directed at her, about her appearance. She felt like melting into the street. Her ears were red, her heart was pounding, but she refused to cry. Her affirmations and her beautiful spirit are reflected in the following poem “I Am” which has drawn over 11,000 “likes” on her Facebook public figure page “DawnInRealTime.”

“I AM” by Dawn P. Jones

I AM Loving

I AM Caring

I AM Compassion

I AM Truthful

I AM Strong

I AM Successful

I AM Wealthy

I AM Joyous

I AM Young

I AM Immortal

I AM Great Health

I AM Courageous

I AM Fearless

I AM Relentless

I AM Grounded

I AM Kind

I AM Forgiving

I AM not the scars you may see,

I AM not the Lymphedema swelling you may see,

I AM not the discolored skin you may see,

I AM not the pain and the nausea,

I AM not my hair,

I AM not cancer,

I AM a daughter, a mother, a sister, an auntie, a lover and a friend,

I AM LOVE,

And what I want you to see is,

I AM A WOMAN, and I AM BEAUTIFUL…….

DawnInRealTime includes a series of short videos chronicling her journey through treatment, and almost daily positive, uplifting messages like “I handle difficult situations with calm endurance” and “I am responsible for my own attitude.”

She was first diagnosed in 2000 and had a year of chemotherapy, a mastectomy, and reconstructive surgery 18 months later. Then 7 years later it returned, this time in her neck, lymphatic system, and chest and back. Doctors at the hospital in Queens where she was being treated said there was nothing else they could do for her. They did not expect her to survive this time. Then a neighbor suggested she research Cancer Treatment Centers of America in Philadelphia where she continues her treatment today.

Dawn takes care of her 86 year-old mother who lives with her now. She says her full-time job is to take care of herself and take care of her mom. She wants everyone to know “We are not the cancer; we are not the disease. We are women. We are women!”

Wanted: Workshops for the 2012 PA Breast Cancer Coalition Conference

Posted By on February 17th, 2012 at 9:01 am | 0 comments.

The PBCC is accepting proposals for workshops to be presented at the PA Breast Cancer Coalition Conference on Tuesday, October 9, 2012. There are six tracks we are using as guidelines for all submitted proposals: Leadership, Advocacy & Education; Advances in Treatment; Research and Clinical Trials; Breast Cancer Survivorship; The Mind/Body Connection; and Caring for the Caregiver. The deadline for submitted proposals is April 2, 2012.

Submitted proposals should contain: your contact information; a description of the workshop including the title, workshop goals and objectives; and biographical information and/or a CV for the suggested presenter along with their contact information if different from your own. Please submit your proposal and direct any process related or general conference related questions to Jennifer Pensinger. You will be notified if your workshop is selected.

Avastin May Have Role in Early Breast Cancer Treatment

Posted By on February 17th, 2012 at 9:00 am | 4 comments.

by Barbara C. Good, PhD

When government approval for the drug AvastinTM  (bevacizumab) was revoked for the treatment of advanced breast cancer last November, there were protests from women who had received it and were convinced the drug helped lessen their disease or even kept them alive.  Now two studies, one from the National Surgical Adjuvant Breast and Bowel Project (NSABP) in Pittsburgh and the other from the University of Frankfurt, Germany, have demonstrated that this drug may have a role to play in the treatment of early-stage breast cancer.

Avastin in these studies was used before surgery in women whose disease had not spread.  In both studies, the women who received it had lower rates of cancer once surgery was performed.  The side effects of this drug can be serious, and additional studies are continuing to see if these results hold up.  Tissue samples from these studies are also being examined to determine if women whose tumors contain particular genetic characteristics may respond more successfully to the drug.

For additional information about these studies, click here.

Abstracts of the studies as they appeared in the New England Journal of Medicine can be found here and here.

 

 

2012 Refunds for Research Awards & Campaign Kick-Off

Posted By on February 17th, 2012 at 8:58 am | 0 comments.

The PBCC kicked off our annual Refunds for Breast and Cervical Cancer Research campaign at Philadelphia’s City Hall on February 13th. Councilman Dennis O’Brien joined PBCC President Pat Halpin-Murphy to recognize the 2012 Refunds for Research awardees from Philadelphia – University of Pennsylvania’s Andy Minn, M.D., Ph.D and Takemi Tanaka, Ph.D. of Thomas Jefferson University. Dr. Minn and Dr. Tanaka were each honored with $50,000 grants for their respective research endeavors.

The PBCC’s Refunds for Research campaign encourages Pennsylvania taxpayers to donate all or part of their state income tax refund to support breast cancer research happening right here in the state. Every penny donated through the program goes to fund grants to researchers. Share the video below with your friends and family to raise awareness about this campaign and help us reach a goal of $3 million for research this year!

Event Calendar: Concert in Media, Basketball in Duncannon, York and Harrisburg

Posted By on January 16th, 2012 at 9:03 am | 0 comments.

If you are looking for something to do this month, check out the PBCC’s Event Calendar to find something happening near you! Live near Media, PA? Treat yourself to the sounds of Mersey: The British Rock Invasion at Media Theatre. Basketball fan near Duncannon, York, or Harrisburg? Check out the hoop action happening near you!

Our calendar provides a glimpse into the many great events put on by our Grassroots Partners, as well as PBCC happenings such as press conferences, traveling photo exhibit appearances, and in July, our Home Run Derby! Bookmark the page for easy access to future events!

Patient Advocacy: 2011 in Review

Posted By on January 16th, 2012 at 9:02 am | 0 comments.

The PBCC is committed to being the voice for women who might otherwise fall through the cracks in the health care system. Whenever we pick up the phone we know that on the other end of the line there might be a woman whose insurance company doesn’t want to cover the procedure that her doctor wants her to have. Or maybe her job is in jeopardy if she has to take time off from work for treatment. Or she has no health insurance and doesn’t know there are programs for which she might qualify.

In 2011, our patient advocate worked with over 60 women to help find the answers they needed. Some were easy referrals to the organization or program to fit her needs. Many were more complicated and involved lengthy follow-ups.

If you, or someone you know, need help please visit the “Needs Help” section of our website. If you don’t find the answer there, contact Dolores Magro at Dolores@PABreastCancer.org.

Dorothy from Lititz, PA wrote us, “My insurance company was refusing to cover a portion of the bill from my reconstructive surgery. They said it was cosmetic. Once I shared with them the information you gave me, they reversed the denial of my 3rd appeal. I never wanted something for nothing. I just wanted what was fair.”

Survivor Spotlight: Ann Dorrance, Dauphin County

Posted By on January 16th, 2012 at 9:01 am | 0 comments.

In December 2002 Ann Dorrance was a 46 year-old mother of 4 ranging from twins in the 4th grade to a daughter in college. Even though a mammogram the previous year showed nothing, she could feel a lump. Not while lying down though. She could only feel it when she was sitting or standing. Ann has always been a person to forge through and do whatever needs to be done.

She had a biopsy, then chemo to shrink the tumor before surgery, a double mastectomy, more chemo and radiation. She put her trust in her physician, Dr. Bob Gordon in Camp Hill, and she believes finding a doctor who really hears you is an extremely important part of the healing process.

A breast cancer diagnosis affects the whole family, not just the patient. Ann’s oldest daughter was scheduled to go to school in Italy for six months but cancelled the trip without telling her mother. It was important to Ann to continue attending her children’s soccer games and other events. But she emphasizes that there is no right or wrong way to handle your treatment. Whatever works for one person doesn’t necessarily work for the next.

The one thing she advises other women is to tell your friends and family how they can help you, because they want to. Some days that might mean telling them to let you be sick alone. Other times you might ask them to cook dinner, especially on chemo days. And it’s a good idea to share your experiences with other women who have walked the path you’re traveling. They understand things you’re going through that no one else can.

Oncotype DX Scores Help Identify DCIS Patients at Low Risk of Recurrence

Posted By on January 16th, 2012 at 9:00 am | 0 comments.

Oncotype DX is a laboratory test developed by Genomic Health, Inc., that has been used to predict the likelihood of chemotherapy benefit and recurrence risk in ER-positive, HER2-negative early stage invasive breast cancer. A report from the San Antonio Breast Cancer Symposium held in December indicates that the test can also predict the likelihood of local recurrence for patients with ductal carcinoma in situ (DCIS).

This study indicated that the test is able to identify women with DCIS who are at low risk for recurrent disease, ie, patients who may be able to avoid radiation therapy after surgery, and those at higher risk, who may require radiation therapy. This means that those who require more treatment would be the ones to receive it, while those with a less aggressive form of DCIS would be able to avoid the side effects sometimes associated with radiation therapy.

DCIS has historically represented a challenge for physicians, who have used a wide spectrum of treatment options from breast conserving surgery with or without radiation to mastectomy. Lumpectomy has become the current standard, following a trend in breast cancer surgery to not “overtreat” patients who may have a less aggressive form of the disease.

More information on this study can be found here.

Coming Soon: PBCC’s Free Online Course for Nurses and Social Workers on the Free Treatment Program

Posted By on January 16th, 2012 at 8:59 am | 0 comments.

The PBCC is proud to announce that its new online course will be available in March. This 2-hour course is FREE for nurses, social workers, or anyone who wants to learn more about how women who have been diagnosed with breast cancer can get FREE Treatment through the Commonwealth of PA’s Breast and Cervical Cancer Prevention and Treatment program (BCCPT). Nurses and social workers can earn 2 credits FREE through taking the course. This program offers full free medical care for uninsured and underinsured women who have been diagnosed with breast or cervical cancer. For the women who learn about the program, the benefits are life saving.

If you are a nurse, social worker, patient navigator, advocate or just someone who wants to know more about this important program then this course is for you.  Look for more information over the next few months. We’ll send out alerts when the course is ready to go.

A special thanks goes to the NSABP for their generous support!