Finding a cure now...so our daughters won't have to.

Archive for the ‘Pink Link’ Category

Survivor Spotlight: Ann Dorrance, Dauphin County

Posted By on January 16th, 2012 at 9:01 am | 0 comments.

In December 2002 Ann Dorrance was a 46 year-old mother of 4 ranging from twins in the 4th grade to a daughter in college. Even though a mammogram the previous year showed nothing, she could feel a lump. Not while lying down though. She could only feel it when she was sitting or standing. Ann has always been a person to forge through and do whatever needs to be done.

She had a biopsy, then chemo to shrink the tumor before surgery, a double mastectomy, more chemo and radiation. She put her trust in her physician, Dr. Bob Gordon in Camp Hill, and she believes finding a doctor who really hears you is an extremely important part of the healing process.

A breast cancer diagnosis affects the whole family, not just the patient. Ann’s oldest daughter was scheduled to go to school in Italy for six months but cancelled the trip without telling her mother. It was important to Ann to continue attending her children’s soccer games and other events. But she emphasizes that there is no right or wrong way to handle your treatment. Whatever works for one person doesn’t necessarily work for the next.

The one thing she advises other women is to tell your friends and family how they can help you, because they want to. Some days that might mean telling them to let you be sick alone. Other times you might ask them to cook dinner, especially on chemo days. And it’s a good idea to share your experiences with other women who have walked the path you’re traveling. They understand things you’re going through that no one else can.

Oncotype DX Scores Help Identify DCIS Patients at Low Risk of Recurrence

Posted By on January 16th, 2012 at 9:00 am | 0 comments.

Oncotype DX is a laboratory test developed by Genomic Health, Inc., that has been used to predict the likelihood of chemotherapy benefit and recurrence risk in ER-positive, HER2-negative early stage invasive breast cancer. A report from the San Antonio Breast Cancer Symposium held in December indicates that the test can also predict the likelihood of local recurrence for patients with ductal carcinoma in situ (DCIS).

This study indicated that the test is able to identify women with DCIS who are at low risk for recurrent disease, ie, patients who may be able to avoid radiation therapy after surgery, and those at higher risk, who may require radiation therapy. This means that those who require more treatment would be the ones to receive it, while those with a less aggressive form of DCIS would be able to avoid the side effects sometimes associated with radiation therapy.

DCIS has historically represented a challenge for physicians, who have used a wide spectrum of treatment options from breast conserving surgery with or without radiation to mastectomy. Lumpectomy has become the current standard, following a trend in breast cancer surgery to not “overtreat” patients who may have a less aggressive form of the disease.

More information on this study can be found here.

Coming Soon: PBCC’s Free Online Course for Nurses and Social Workers on the Free Treatment Program

Posted By on January 16th, 2012 at 8:59 am | 0 comments.

The PBCC is proud to announce that its new online course will be available in March. This 2-hour course is FREE for nurses, social workers, or anyone who wants to learn more about how women who have been diagnosed with breast cancer can get FREE Treatment through the Commonwealth of PA’s Breast and Cervical Cancer Prevention and Treatment program (BCCPT). Nurses and social workers can earn 2 credits FREE through taking the course. This program offers full free medical care for uninsured and underinsured women who have been diagnosed with breast or cervical cancer. For the women who learn about the program, the benefits are life saving.

If you are a nurse, social worker, patient navigator, advocate or just someone who wants to know more about this important program then this course is for you.  Look for more information over the next few months. We’ll send out alerts when the course is ready to go.

A special thanks goes to the NSABP for their generous support!

Three Researchers Awarded 2012 Refunds for Research Grants

Posted By on January 16th, 2012 at 8:58 am | 2 comments.

Thanks to the generosity of state taxpayers, three researchers will be awarded grants through the PBCC’s 2012 Refunds for Breast and Cervical Cancer Research initiative. Allan Lipton, M.D. of the Penn State College of Medicine, Andy Minn, M.D., Ph.D. of the University of Pennsylvania, and Takemi Tanaka, Ph.D. of Thomas Jefferson University will each receive a $50,000 grant to be used during this calendar year on their respective research projects.

All three researchers’ topics deal with the issue of metastases. Dr. Lipton’s research focus is Predicting Response to HER2-Targeted Therapy. The focus of Dr. Minn’s research is Identification of Metastasis Signaling Pathways That Regulate and Predict Organ-Specific Metastasis. Dr. Tanaka’s research centers on Prevention of Breast Cancer Metastases.

The PBCC’s Refunds for Research grants are made possible through contributions from state taxpayers who choose to contribute all or part of their state income tax refund to the program. Every penny raised through state taxpayers’ contributions goes to fund research happening right here in Pennsylvania.

A public kick-off event for the 2012 Refunds for Research campaign will be held on Monday, March 12 at 2:30 pm in the Main Rotunda at the Capitol Building in Harrisburg. Another event will be held in Philadelphia in early February at a time and location to be determined. Join us in recognizing these three talented researchers and thanking Pennsylvania taxpayers for their continued support of this crucial program.

Ringing in the New Year with Renewed Hope for a Cure

Posted By on January 16th, 2012 at 8:57 am | 0 comments.

2011 was yet another incredible year for the PA Breast Cancer Coalition. We sent 497 Friends Like Me Care Packages to newly diagnosed women across the state. Our 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania traveling photo exhibit visited 5 communities and touched the lives of thousands of individuals. 151 teams and 16 single batters stepped up to the plate for the Take a Swing Against Breast Cancer home run derby in July.

Over 60 women were assisted by our patient advocacy efforts.  Nearly 1,000 breast cancer survivors, advocates, health care professionals, and community and corporate leaders attended the PA Breast Cancer Coalition Conference in October. $100,000 was given to Dr. Craig Meyers at the Penn State College of Medicine to further his promising research into a virus that kills breast cancer cells that could potentially lead us to a cure. Grassroots Partners raised over $425,000 to enable us to continue our efforts on behalf of women and their families.

In 2012, we remain committed to representing, supporting and serving breast cancer survivors and their families in Pennsylvania. We renew our commitment to the goal of finding a cure for breast cancer now…so our daughters won’t have to.  Please join us!

 

North Dickinson Elementary School Penny Wars: Small Change Makes Big Impact

Posted By on December 16th, 2011 at 9:02 am | 0 comments.

Fraternal twins Sam and Clay and their fellow classmates Delaney and Tyler were inspired to make change during October by collecting change with their Penny, Nickel, and Dime Wars fundraiser to benefit the PBCC. The foursome challenged students in every classroom at North Dickinson Elementary (Cumberland County) to compete with other classrooms by bringing in change and small bills from home. Students raised $3,065 on their own, with donations from the community bringing their grand total to $5,865.

Carlisle Regional Medical Center, the Tuckey Companies, the Phillips Group, Giant, and the North Dickinson Elementary School PTO joined in support of the students’ efforts with donations. The classroom that raised the most – Denise Stasyszyn’s combined fourth- and fifth-grade class – was rewarded with a pizza party courtesy of Little Caesars. But the impressive school wide effort was recognized by Dairy Queen with an ice cream party. Thanks to Sam, Clay, Delaney, Tyler and all the students, parents, teachers and staff of North Dickinson Elementary for showing that a little change can go a long way to helping in the fight against breast cancer!

Survivor Spotlight – Marjorie Stromberg, Centre County

Posted By on December 16th, 2011 at 9:01 am | 2 comments.

It was the happiest time in my life. I had just gotten engaged two months before, had just finished running my first two 5Ks, and was in the best shape of my life. My job was great, I loved my family and friends and social life, and now was planning to marry the love of my life. That’s when I was diagnosed with breast cancer and my world changed. I am Marjorie, a 26-year-old newspaper reporter who was diagnosed with breast cancer in April 2011.

I had recently lost about 30 pounds on Weight Watchers, and was running 5Ks with my fiancé. I found a lump in the shower while doing a self-breast exam. Being a childhood cancer survivor (I had Leukemia when I was 12), I was understandably worried. But when I called my doctors they reassured me: I was 26. Too young to get breast cancer. The lump was probably just a cyst.

Luckily, my doctor scheduled a fine needle aspiration anyway. A few days later, on the first day of Passover, I was at my fiance’s family’s house near Philadelphia when I got the call at 8:30 in the morning. That’s how I knew something was wrong. The doctor told me, over the phone, that some cancer cells showed up in my fine needle aspiration, and I would need to be treated. Days later I was in Hershey, and for the two weeks that followed my life was a blur. There was test after test after test. And after each test was more waiting. And wondering. And crying. Would I get married in March like we had planned? Would we even be able to plan this wedding? Why was this happening to me, right now? I’m a 26-year-old bride-to-be at the prime in her life. Why me, and why now?

Later it was confirmed I had DCIS- Ductal Carcinoma in Situ. I had a right mastectomy in May with three lymph nodes removed. Luckily, the cancer was caught so early it hadn’t spread to the lymph nodes, and no invasive cancer was found, so no chemotherapy was needed. I tested negative for hormone receptors, so I didn’t receive any type of hormone treatment, and tested negative for the BRCA gene, so the doctor didn’t recommend a bilateral mastectomy.

During my mastectomy surgery I had a tissue expander put in to prepare my skin and chest for a permanent implant later down the road. My doctor confirmed that the mastectomy got “all of it” but was still concerned about how close the tumor was to my skin, so I went in for another surgery in August in which she removed more skin, muscle and fat to get a clear margin. The pathology came back clear. It was officially gone. Now I have just finished my second round of saline fills for my expander, and am waiting for my implant surgery which will be in the end of October.

The wedding planning is well underway and we are scheduled to walk down the aisle in March! My fiancé and his family, and my family, and all of our friends have been absolutely phenomenal throughout the process. I don’t know what I would do without them by my side. Although my treatment is done, I still have my reconstructive surgery left. I’m also left with fear and anxiety of the cancer returning, or occurring in the other breast. I am learning to deal, each day, with my “new normals” – having a very painful tissue expander, and eventually silicone implants. And knowing I lost a breast at the age of 26 to cancer.

Each day is a new journey, and I’m chugging along, but I’m scared, hurt and torn up. I know I have the inner strength to get through this, and an amazing support system to lean on. I know this experience, however painful and devastating, both physically and emotionally, will make me a stronger, better person in the end. I’m working hard to be my best me.

I want younger women to be aware that breast cancer can happen to them, and to do self-exams. If I hadn’t found my own cancer I don’t know how many months, or years, it would have been until it was found. People don’t talk enough about young women with breast cancer. But, we’re out there and we deserve to be heard.

Marjorie Stromberg is one of two Survivor Story winners from our September Pink Link contest. 

Breast Cancer Risk May Be Reduced with Bisphosphonates

Posted By on December 16th, 2011 at 9:00 am | 0 comments.

Bisphosphonates are a class of drugs now used to prevent the loss of bone mass in women with osteoporosis. Previous studies have shown that this class of drugs also appears to prevent cancer metastasis to the bones when a woman has breast cancer. A very recent study, published in the International Journal of Cancer, indicates that these drugs may also lower the risk for developing primary breast cancer.

In the IJC study, the records of almost 42,000 women in the United Kingdom were examined and when those who had been taking oral bisphosphonates to those who had not, researchers found a reduction in the former group in both breast and colorectal cancers. An abstract for the article can be found here.

67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania in Greene County

Posted By on December 16th, 2011 at 8:59 am | 0 comments.

Sharon Willison, Chief of Staff to PA State Senator Timothy J. Solobay, pictured with Heather Hibshman, PBCC Executive Director at the Greene County reception.

 

The busy fall schedule for the 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania traveling photo exhibit brought the display to Southwest Regional Medical Center (SRMC) in Greene County in early November. Heather Hibshman, the PBCC’s Executive Director, spoke at the event along with Carolyn Wissenbach, Penn State County Extension Director and Greene County Cancer Coalition Chair; Cynthia J. Cowie, CEO of SRMC; H. Adam Patton, D.O., Diagnostic Radiology of SRMC; and Valerie Cole, a breast cancer survivor and SRMC volunteer.

The exhibit, which features photos and quotes from women from each county in Pennsylvania, brings the message of breast cancer awareness and the importance of early detection to every community it visits. Thanks to the Pennsylvania Department of Health for their continued support of the traveling photo exhibit.

Refunds for Breast Cancer Research

Posted By on December 16th, 2011 at 8:58 am | 0 comments.

CHRISTINE BAKER, The Patriot-News

The PBCC visited Dr. Craig Meyers’ lab at the Penn State College of Medicine to get a first hand glimpse at the promising research happening there. Thanks in part to an initial grant through the PBCC’s Refunds for Research program, Dr. Meyers’ team was able to discover a virus that effectively kills breast cancer cells. Refunds for Research is made possible through the generosity of Pennsylvania taxpayers who contribute their refunds for breast cancer research.

When more funding was needed to continue the study, the PBCC was able to provide Dr. Meyers with an additional research grant of $100,000. Many researchers have applied for grants for the 2012 program cycle, and those who have been selected to receive grants will be announced in the coming months. You can help fund research like Dr. Meyers’ groundbreaking study by donating all or part of your state income tax refund to the PBCC’s Refunds for Research program. Every penny contributed through the state income tax refund goes directly to fund breast and cervical cancer research happening right here in Pennsylvania.