Finding a cure now...so our daughters won't have to.

Why You Should Follow PBCC on Facebook and Twitter

Posted By on September 19th, 2011 at 2:05 pm | 0 comments.

The rise of social media has provided the PBCC with additional means to communicate to those who are interested in the work of our organization. The addition of social media accounts on Facebook and Twitter give the PBCC another instantaneous way to communicate and interact with those who care about breast cancer issues in Pennsylvania and beyond.

Follow the PBCC on Facebook or Twitter if you have social media accounts of your own. There you’ll be able to see links to stories of interest, a recap of some of our Grassroots Partners and media events, and other items of note in real time. And you can interact with us – let us know if you were at one of the events, give us your insight or share your experience.

If you know anyone who would like to receive Pink Link, please have them sign up here.

We hope to see you on Facebook and Twitter soon!

CancerCare

Posted By on September 19th, 2011 at 2:04 pm | 0 comments.

CancerCare is a national nonprofit organization that provides free professional support services to cancer patients, caregivers, and family members. They offer counseling, support groups, educational workshops, community programs, and publications that may be of use to anyone affected by cancer. They also provide financial assistance as it relates to certain treatment-related costs for eligible individuals.

CancerCare has a comprehensive user-friendly website that may help answer many questions you may be facing as a patient, caregiver, or family member coping with cancer. Among the website’s resources are a list of inspirational stories and a Q&A section that focuses on a particular cancer related topic each month.

Survivor Spotlight – Heather Stempka, Erie County

Posted By on September 19th, 2011 at 2:03 pm | 0 comments.

Following her second breast cancer diagnosis at 33 years old, Heather Stempka wanted to reassure other young women that they didn’t have to take the breast cancer journey on their own. She co-founded Linked by Pink, which is a nonprofit organization that raises awareness about breast cancer in young women, particularly those who were diagnosed under the age of 45, and that provides resources to them.

While Linked by Pink is based in Erie, PA, Heather has used social media outlets like Facebook to broaden the horizons for the organization. Heather will be presenting the “Advocacy Using Social Media” workshop at the 2011 PA Breast Cancer Coalition Conference on Tuesday, October 11.

Heather’s passion for helping people led her back to school to finish her degree in psychology with a minor in crisis counseling. She will graduate next summer from Liberty University.

Linked by Pink offers $500 medical grants to assist women battling breast cancer. Currently, the grants are only available to those who live within a 45 mile radius of Erie, PA, although they hope to extend their reach further in the future. For information on how to apply for these grants, visit the Linked by Pink website.

Cancer Clinical Trials Cooperative Groups Undergo Restructuring

Posted By on September 19th, 2011 at 2:02 pm | 0 comments.

By: Barbara C. Good, Ph.D.    It is not only private citizens who are undergoing belt tightening in these difficult economic times.  The National Cancer Institute (NCI), which has for years funded clinical trials carried out by the 10 adult cancer cooperative trials groups, recently determined that there be only four such groups from this point forward into the foreseeable future.  At this time, the previous groups are coming to agreements among themselves about which groups will merge together to meet this mandate.

Government-funded clinical trials will continue, but the manner in which they are carried out, how exactly the different groups’ methods of operation will be melded, and issues such as the particulars of data analysis and sample storage are as of now under consideration by the group chairs.

Under the new system, it is critical that NCI-sponsored trials continue to attract patient participants.  The federal government, unlike private industry, can for the most part conduct these studies without the burden, real or perceived, of financial interest being a driving factor.  Government-sponsored clinical trials have led to many of the advances in cancer treatment made over the past 40 years, including, in breast cancer trials, the option of lumpectomy and radiation instead of mastectomy, the common use of chemotherapy for treatment, and the use of tamoxifen as a preventive agent for women at high risk. Click here for more information about the current state of the clinical trials cooperative groups. Or, for more information on clinical trials in general, click here.

Check Your Calendar for PBCC Conference

Posted By on September 19th, 2011 at 2:01 pm | 0 comments.

Is Tuesday, October 11 circled on your calendar? If not, there’s still time to join hundreds of breast cancer survivors and advocates at the PA Breast Cancer Coalition Conference in Harrisburg for an unforgettable day full of educational workshops, engaging speakers, a delicious luncheon, and many new friends. Register now using coupon code PINK to save $10 off your $85 registration fee.

Help us honor the achievements of our 2011 Conference Award Recipients, who have each made significant contributions in the fight against breast cancer in their own way – whether it be through research or treatment of the disease, or through advocacy and fundraising. Choose from 13 workshops with topics varying from cutting edge research to advocacy. Browse our exhibitor tables and get a head start on holiday shopping.

With something for everyone, you don’t want to miss the PA Breast Cancer Coalition Conference. Register now. Click here.

Share Your Story and Win

Posted By on September 19th, 2011 at 2:00 pm | 0 comments.

As breast cancer survivors, we each have a story. Most have a similar beginning – usually with the words, “You have breast cancer.” But what happens next is what makes each of us unique. How we respond, what we must do, what decisions we make – no two journeys are the same. We at the PBCC want to hear your stories.

We want to share them with other breast cancer survivors, advocates and family members. We are holding a contest for survivors to submit their stories, which we may feature in an upcoming Survivor Spotlight in either our Pink Link or FrontLine newsletters. One grand prize winner will receive two FREE registrations for our 2011 PA Breast Cancer Coalition Conference, and everyone will receive a free gift for submitting their story. Entry details can be found here.

Eagle Rock Women’s Golf “Swing Fore a Cure”

Posted By on August 15th, 2011 at 8:57 am | 0 comments.

Golfers put on their pink to hit the links at the Eagle Rock Resort for the Eagle Rock Women’s Golf “Swing Fore a Cure” Tournament on August 3. With a starting time of 8:30, golfers enjoyed a morning on the green before being treated to a luncheon following the tournament. What a wonderful way to mix a love of golf with the support of a good cause!

The PBCC traveled to Hazleton with information for the participants so that they would know how the PBCC works on behalf of breast cancer survivors and their families across Pennsylvania. Our gratitude and thanks to event organizer Judy Hall and all those who helped make the event such a tremendous success.

If you are planning a golf tournament or another event and would like to talk to someone about fundraising for the PBCC through your event, please email Sarah Lightman  or call 800-377-8828 x107!

KAMMCares: Grants for Non Medical Expenses

Posted By on August 15th, 2011 at 8:56 am | 2 comments.

KAMMCares is a California-based national organization dedicated to helping anyone going through treatment for breast cancer. KAMMCares places funds directly in the hands of patients. The money can be used for child care costs, groceries, and any other day-to-day expenses. To apply, you must currently be in treatment for breast cancer, and provide a description of yourself, your life and interests, and a recent photo.

The complete application process can be found at the KAMMCares website. KAMMCares also requires a letter from your doctor outlining information about the type of treatment you are receiving and the length of time you have been in treatment. The organization requires that this information be provided on your doctor’s letterhead and signed by hand in ink by the doctor. KAMMCares will not accept photocopies or faxes.

More information about KAMMCares and the application process is here.

Survivor Spotlight – Julie Rockey

Posted By on August 15th, 2011 at 8:55 am | 4 comments.

Julie Rockey describes herself as a Type A personality, someone who is always on the go. Combine that with her love of organizing fun and interesting things to do and you get the Ta-Ta Trot, a fundraiser to benefit the PBCC! Julie was diagnosed with breast cancer in February 2010. She was 30 years old at the time and went for a routine ob/gyn exam. She was just checking to be sure everything was fine to get pregnant; a breast cancer diagnosis was the last thing she expected that day.

Her doctor did a breast exam, sent Julie for a mammogram, and within a day she learned that she had breast cancer. Julie was very open about what she was going through and was able to create a large support system with work, family and friends.

While she was going through chemo a friend who was planning a 5K walk/run approached her with the idea, offering Julie the option to select the nonprofit to benefit from it. He also introduced her to Cheryl Delsite, a breast cancer survivor and long-time PBCC volunteer. It was important to Julie that the money raised through the event would be used locally to help women in Pennsylvania. After talking with Cheryl, Julie decided that the PBCC would be the best organization to receive the funds.

Ta-Ta Trot was held in Sunbury, PA on July 9th and drew an astounding 655 walkers & runners who raised over $14,000! Everyone in the community is excited for next year and the goal is to increase to 1,000 participants! All the proceeds from the event benefitted the PBCC in memory of Marie Lamey, R.N., a breast cancer nurse at Geisinger Health System, where Julie is Senior Director of Operations. Many of the volunteers were Geisinger employees who wanted to honor Marie with their participation, and Dr. Victor Vogel, Director of the Geisinger Cancer Institute, spoke at the opening ceremony.

Julie completed her breast cancer treatment in June. She tells other women that she thinks of breast cancer as a life sentence, not a death sentence. She has learned to level out and take a deep breath once in a while. She decided from the first day that she would not let it bring her down. Now, because of having had breast cancer, she has hundreds of friends that she didn’t have before. And probably hundreds more next year after the Ta-Ta Trot!

Retrospective Study Results Reinforce Tamoxifen’s Reputation

Posted By on August 15th, 2011 at 8:54 am | 0 comments.

In a study that looks back at 20 randomized, controlled trials of the breast cancer drug tamoxifen, researchers in the Breast Cancer Trialists Collaborative Group report that 15 years after a diagnosis of estrogen receptor-positive breast cancer and 10 years after stopping the drug, women who took tamoxifen had a 1/3 lower risk of dying than those who did not take it. A lead investigator in the study stated that tamoxifen “has probably saved more lives than any other oncological drug ever.”

In addition, as has been noted in earlier studies, women who took the drug were about 40% less likely to have recurrent breast cancer. This study will be published in an upcoming issue of the journal The Lancet. More information will also be available in the Fall 2011 issue of the PBCC’s quarterly newsletter, FrontLine.