Finding a cure now...so our daughters won't have to.

Posts Tagged ‘survivor’

Survivor Spotlight – Heather Vail

Posted By on April 13th, 2012 at 9:02 am | 0 comments.

I attended my first PBCC conference in 2001 when my good friend Helen Harshbarger was honored with the Shining Light award. Through Helen, I also became involved with the PBCC’s traveling photo exhibit. Then in 2006 my routine mammogram uncovered a density. I had a biopsy, just to be sure it was nothing to be concerned about but as it turned out, it was breast cancer. I had surgery, radiation, and was on tamoxifen for the next five years.

I had worked in the women’s center at Guthrie Hospital for quite some time, but until you’ve walked in those shoes yourself you really don’t know what it’s like. I was always supportive of patients and friends but being on the receiving end of that support showed me how important that is.

One of my two sons was in Iraq at the time of my diagnosis and I didn’t tell him about it. I didn’t want him worrying about me while I was worrying about him. My other son, my husband, my daughter-in-law, friends and neighbors were wonderful! Faith in God helped me get through surgery and recovery.

Now I work in the breast center at Guthrie, and one of the things I enjoy most is stepping in for Karen Cartwright, the nurse navigator, when she’s not available. I take the patient’s history, ask them how they are doing, and let them know that I’ve been through it too.

I like to read, walk my two rescue dogs, and work in my garden. My husband Red and I also have a 12 year-old cat that dislikes everyone and tolerates the dogs. I follow professional football and am an avid Penn State fan. I also watch “Dancing with the Stars,” and I actually vote!

Heather is featured in the PBCC’s traveling photo exhibit 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania.  See Heather’s photo and quote at any of our Spring opening receptions.

York Kia Ladies Month

Posted By on April 5th, 2012 at 3:39 pm | 0 comments.

During the month of March, York Kia was honoring all of the women in our lives. They chose to donate $50 from each new car sold to the PBCC to raise awareness of breast cancer in the state. Thanks to the efforts of the entire staff, York Kia donated $2,000!! Thanks for sharing the importance of early detection and education!

York Kia Ladies Month

Pictured are Debbie Simon, breast cancer survivor; JoAnn Graham, breast cancer survivor; Heather Hibshman, Executive Director of the PBCC; Don Meluzio, Owner of York Kia; and Jeff Staub, New Car Sales Manager of York Kia.

Spring 2012 edition of FrontLine

Posted By on March 28th, 2012 at 11:56 am | 0 comments.

By now, if you’re on our mailing list, you should have received the latest edition of FrontLine. The PBCC sends out this print newsletter every quarter to let you know what we’re up to across the state and how YOU can get involved!

Take a read through our online edition and share it with your friends!

Survivor Spotlight – Merrilynn Cushman

Posted By on March 16th, 2012 at 9:02 am | 4 comments.

When I was diagnosed with breast cancer I was a 40 year-old single mother of two, a 3 year-old and a 5 year-old. They were my touchstones. Every decision was based on what would give me a better chance to be here for them. My first baseline mammogram detected the breast cancer. I had a needle localization biopsy and was told that the margins from that procedure were adequate and I could proceed to radiation and tamoxifen. I wasn’t comfortable though and I went to Dr. Norman Wolmark for a 2nd opinion.

I had read that the risk of recurrence after a mastectomy was less than 1% as compared to 5% with a lumpectomy. One of the things I love best about Dr. Wolmark is that he never leaves the room until all your questions are answered. After discussing it with him, I decided to have a mastectomy. During that surgery, previously undetected cancer cells were found deeper in my breast. Listening to my own inner voice was the right thing to do.

I live 250 miles away from my closest family but my sister, sister-in-law and mother took turns coming to stay with me. A friend made a schedule for others in the community to drive me to appointments, cook meals, and do whatever I needed. I had purchased new wallpaper for my living room and when I came home from the hospital I found that they had put it up!

I’m private and hadn’t planned on sharing so publicly about having breast cancer. But after my surgery my 5 year-old daughter (who is now 14) touched my face. She said “I’m like you. Will I have breast cancer too?” That motivated me to support finding a cure. That, and the desire to pay back for all the help I received.

Merrilynn is Community Relations Director at Titusville Area Hospital and represents Crawford County in the PBCC traveling photo exhibit. She loves spending time with her children and running.

Survivor Spotlight – Dawn Jones

Posted By on February 17th, 2012 at 9:01 am | 2 comments.

Dawn Jones wrote down affirmations to heal herself after experiencing a particularly hurtful encounter on Fifth Avenue in New York. Dawn was diagnosed with inflammatory breast cancer and, after her mastectomy, doctors advised her to wait at least 12 months before having reconstruction. Bald, with a size 44D breast on one side and flat on the other side, she held her head high. But on this particular day she came face-to-face with cruelty.

She was strolling down the street reflecting on the lovely luncheon she had just had with other breast cancer survivors when her thoughts were interrupted by the sound of derisive comments. She was shocked to realize they were being directed at her, about her appearance. She felt like melting into the street. Her ears were red, her heart was pounding, but she refused to cry. Her affirmations and her beautiful spirit are reflected in the following poem “I Am” which has drawn over 11,000 “likes” on her Facebook public figure page “DawnInRealTime.”

“I AM” by Dawn P. Jones

I AM Loving

I AM Caring

I AM Compassion

I AM Truthful

I AM Strong

I AM Successful

I AM Wealthy

I AM Joyous

I AM Young

I AM Immortal

I AM Great Health

I AM Courageous

I AM Fearless

I AM Relentless

I AM Grounded

I AM Kind

I AM Forgiving

I AM not the scars you may see,

I AM not the Lymphedema swelling you may see,

I AM not the discolored skin you may see,

I AM not the pain and the nausea,

I AM not my hair,

I AM not cancer,

I AM a daughter, a mother, a sister, an auntie, a lover and a friend,

I AM LOVE,

And what I want you to see is,

I AM A WOMAN, and I AM BEAUTIFUL…….

DawnInRealTime includes a series of short videos chronicling her journey through treatment, and almost daily positive, uplifting messages like “I handle difficult situations with calm endurance” and “I am responsible for my own attitude.”

She was first diagnosed in 2000 and had a year of chemotherapy, a mastectomy, and reconstructive surgery 18 months later. Then 7 years later it returned, this time in her neck, lymphatic system, and chest and back. Doctors at the hospital in Queens where she was being treated said there was nothing else they could do for her. They did not expect her to survive this time. Then a neighbor suggested she research Cancer Treatment Centers of America in Philadelphia where she continues her treatment today.

Dawn takes care of her 86 year-old mother who lives with her now. She says her full-time job is to take care of herself and take care of her mom. She wants everyone to know “We are not the cancer; we are not the disease. We are women. We are women!”

We Take Our Mission Seriously

Posted By on February 7th, 2012 at 2:54 pm | 0 comments.


It’s the PA Breast Cancer Coalition’s mission to give breast cancer survivors a voice within our Commonwealth. We believe we are that voice in the medical, legislative, insurance and corporate communities.

Since 1993, we have dedicated ourselves to finding a cure for breast cancer. Our many acclaimed statewide outreach efforts, along with our grassroots partners raise thousands of dollars for research each year. The money raised goes to people like Dr. Craig Meyers, a researcher at the Penn State College of Medicine. Dr. Meyers recently discovered a nondisease-causing virus that successfully kills breast cancer cells in the laboratory. With the help of our outreach efforts and grassroots partners we can give him the funding he needs to one day conduct human trials that will hopefully lead to a cure to breast cancer.

We believe that anyone can help make a difference in the lives of those fighting breast cancer and their families. It’s the creativity and talents of people like you that can truly make a difference. We know that the only way to end breast cancer is to find a cure and believe with your help we can do so.

My battle with breast cancer ignites my resolve to make certain that our generation is the last to ever fear breast cancer. As a mother and grandmother, I thank you for joining the PBCC’s efforts to find a cure now… so our daughters and granddaughters won’t have to.

Survivor Spotlight: Ann Dorrance, Dauphin County

Posted By on January 16th, 2012 at 9:01 am | 0 comments.

In December 2002 Ann Dorrance was a 46 year-old mother of 4 ranging from twins in the 4th grade to a daughter in college. Even though a mammogram the previous year showed nothing, she could feel a lump. Not while lying down though. She could only feel it when she was sitting or standing. Ann has always been a person to forge through and do whatever needs to be done.

She had a biopsy, then chemo to shrink the tumor before surgery, a double mastectomy, more chemo and radiation. She put her trust in her physician, Dr. Bob Gordon in Camp Hill, and she believes finding a doctor who really hears you is an extremely important part of the healing process.

A breast cancer diagnosis affects the whole family, not just the patient. Ann’s oldest daughter was scheduled to go to school in Italy for six months but cancelled the trip without telling her mother. It was important to Ann to continue attending her children’s soccer games and other events. But she emphasizes that there is no right or wrong way to handle your treatment. Whatever works for one person doesn’t necessarily work for the next.

The one thing she advises other women is to tell your friends and family how they can help you, because they want to. Some days that might mean telling them to let you be sick alone. Other times you might ask them to cook dinner, especially on chemo days. And it’s a good idea to share your experiences with other women who have walked the path you’re traveling. They understand things you’re going through that no one else can.

Survivor Spotlight – Marjorie Stromberg, Centre County

Posted By on December 16th, 2011 at 9:01 am | 2 comments.

It was the happiest time in my life. I had just gotten engaged two months before, had just finished running my first two 5Ks, and was in the best shape of my life. My job was great, I loved my family and friends and social life, and now was planning to marry the love of my life. That’s when I was diagnosed with breast cancer and my world changed. I am Marjorie, a 26-year-old newspaper reporter who was diagnosed with breast cancer in April 2011.

I had recently lost about 30 pounds on Weight Watchers, and was running 5Ks with my fiancé. I found a lump in the shower while doing a self-breast exam. Being a childhood cancer survivor (I had Leukemia when I was 12), I was understandably worried. But when I called my doctors they reassured me: I was 26. Too young to get breast cancer. The lump was probably just a cyst.

Luckily, my doctor scheduled a fine needle aspiration anyway. A few days later, on the first day of Passover, I was at my fiance’s family’s house near Philadelphia when I got the call at 8:30 in the morning. That’s how I knew something was wrong. The doctor told me, over the phone, that some cancer cells showed up in my fine needle aspiration, and I would need to be treated. Days later I was in Hershey, and for the two weeks that followed my life was a blur. There was test after test after test. And after each test was more waiting. And wondering. And crying. Would I get married in March like we had planned? Would we even be able to plan this wedding? Why was this happening to me, right now? I’m a 26-year-old bride-to-be at the prime in her life. Why me, and why now?

Later it was confirmed I had DCIS- Ductal Carcinoma in Situ. I had a right mastectomy in May with three lymph nodes removed. Luckily, the cancer was caught so early it hadn’t spread to the lymph nodes, and no invasive cancer was found, so no chemotherapy was needed. I tested negative for hormone receptors, so I didn’t receive any type of hormone treatment, and tested negative for the BRCA gene, so the doctor didn’t recommend a bilateral mastectomy.

During my mastectomy surgery I had a tissue expander put in to prepare my skin and chest for a permanent implant later down the road. My doctor confirmed that the mastectomy got “all of it” but was still concerned about how close the tumor was to my skin, so I went in for another surgery in August in which she removed more skin, muscle and fat to get a clear margin. The pathology came back clear. It was officially gone. Now I have just finished my second round of saline fills for my expander, and am waiting for my implant surgery which will be in the end of October.

The wedding planning is well underway and we are scheduled to walk down the aisle in March! My fiancé and his family, and my family, and all of our friends have been absolutely phenomenal throughout the process. I don’t know what I would do without them by my side. Although my treatment is done, I still have my reconstructive surgery left. I’m also left with fear and anxiety of the cancer returning, or occurring in the other breast. I am learning to deal, each day, with my “new normals” – having a very painful tissue expander, and eventually silicone implants. And knowing I lost a breast at the age of 26 to cancer.

Each day is a new journey, and I’m chugging along, but I’m scared, hurt and torn up. I know I have the inner strength to get through this, and an amazing support system to lean on. I know this experience, however painful and devastating, both physically and emotionally, will make me a stronger, better person in the end. I’m working hard to be my best me.

I want younger women to be aware that breast cancer can happen to them, and to do self-exams. If I hadn’t found my own cancer I don’t know how many months, or years, it would have been until it was found. People don’t talk enough about young women with breast cancer. But, we’re out there and we deserve to be heard.

Marjorie Stromberg is one of two Survivor Story winners from our September Pink Link contest. 

Survivor Spotlight: Kathy Clarke

Posted By on November 17th, 2011 at 9:01 am | 0 comments.

This is my story of how being diagnosed in my thirties with breast cancer forever changed my life. I just turned 36 years old when I was diagnosed with Stage IIB Invasive Ductal Carcinoma. I was a healthy mother of two young boys (ages 2 and 5) and had no risk factors for developing breast cancer. Everyone deals with cancer in different ways. For me, having a positive attitude was so important in dealing with cancer.

I remember one day at work, a co-worker asked me about my diagnosis. I explained it to her as I explained it to anyone who asked. I remember when I told her that I felt lucky that my cancer did not spread any further that it did (3 cancerous lymph nodes of the 29 removed), she was surprised and said, “Wow, I can’t believe you just said that you feel lucky.” I really did feel lucky and I knew that I was going to get through any adversity that I may face throughout treatment. At that point, I was determined to not let anyone bring me down or feel sorry for me, so I surrounded myself with people who had positive attitudes.

My children kept me focused on getting through all the treatments and adversities. Although this may sound very simple, my goal throughout treatment was to be able to read books to my children every night before bed and except for a few days that I was hospitalized, I accomplished my goal.

I hope that I can use what I have learned to provide support and comfort to others going through similar situations. I received a Friends Like Me care package from the PBCC shortly after my diagnosis and my husband and I spent an evening looking at everything in the package. I have since referred several newly diagnosed women to the PBCC for information.

I know that my breast cancer experience has made me a very strong person. My life is not all that much different than before breast cancer except that I do not worry as much about small stuff, and I find joy in many more things than I used to.

I feel honored that I am now one of the women who represents Cumberland County in the PBCC’s 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania traveling photo exhibit. For the past three years I attended the Penn State Lady Lions Pink Zone basketball games. Those games have been an awesome experience and what an amazing increase in support I have seen in just 3 years!

It has been three years since my breast cancer diagnosis and I know that whatever the future holds, my family and I will be able to handle it. My experience with breast cancer has taught me to never take ANYONE or ANYTHING for granted and that life is about family and friends: love them and spend time with them while you can! I know that early detection saved my life!

Kathy Clarke is one of two Survivor Story winners from our September Pink Link contest. Look for the other contest winner’s story to be featured in the December Pink Link.

Fox Chase Hosts 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania

Posted By on November 17th, 2011 at 8:59 am | 0 comments.

The PBCC was pleased to bring our traveling photo exhibit, 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania to Fox Chase Cancer Center last month. Fox Chase Cancer Center President & CEO Michael Seidel, M.D., Ph.D. welcomed all to Fox Chase for the opening reception. Joanne Grossi, Regional Director of the U.S. Department of Health and Human Services and Lori Goldstein, M.D., Associate Professor & Director of the Naomi and Phil Lippincott Breast Evaluation Center spoke at the reception.

Breast cancer survivor and Philadelphia County exhibit participant Judi Blue shared her story with the audience. PBCC President & Founder Pat Halpin-Murphy invited all survivors to join her and Judi to celebrate the courage, hope and dignity with which they have faced breast cancer in a powerful ceremony at the podium.

The 67 Women, 67 Counties: Facing Breast Cancer in Pennsylvania traveling photo exhibit is funded by the PA Department of Health.